Greenwich Free Press (https://greenwichfreepress.com/tag/vanishing-white-matter-families-foundation/)
The entire Glenville School community are knitting winter hats and key chains to benefit Vanishing White Matter (VWM) Families Foundation. Fourth grader Sam Buck has the rare disease. Continue Reading →
Former NHL All-Star Theo Fleury enthralled visitors as the headlining motivational speaker to help raise money for medical research of an extremely rare brain disease during a recent visit to the Ridgefield Playhouse on Rare Disease Day. Continue Reading →