One in every 10 Americans has a rare disease, but because individually these diseases are so rare, getting desperately needed money for research and patient support can be extremely challenging. Continue Reading →
Rare Disease Day
Recent Posts
Town of Greenwich Proclaims Feb 26 Rare Disease Awareness Day
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The Town of Greenwich will grant an official proclamation of February 26,
2021 as Rare Disease Awareness Day. Continue Reading →
Filed under: Government, Health, Fibrolamellar Cancer Foundation, Fibrolamellar on Rare Disease Day, Rare Disease Awarenes Day, Rare Disease Day, The National Organization for Rare Disorders
NHL All-Star Theo Fleury Shares Personal story to Support Greenwich Boy with Brain Disease
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Former NHL All-Star Theo Fleury enthralled visitors as the headlining motivational speaker to help raise money for medical research of an extremely rare brain disease during a recent visit to the Ridgefield Playhouse on Rare Disease Day. Continue Reading →