Greenwich Free Press (https://greenwichfreepress.com/tag/rare-disease-day/)
One in every 10 Americans has a rare disease, but because individually these diseases are so rare, getting desperately needed money for research and patient support can be extremely challenging. Continue Reading →
The Town of Greenwich will grant an official proclamation of February 26,
2021 as Rare Disease Awareness Day. Continue Reading →
Former NHL All-Star Theo Fleury enthralled visitors as the headlining motivational speaker to help raise money for medical research of an extremely rare brain disease during a recent visit to the Ridgefield Playhouse on Rare Disease Day. Continue Reading →