Vanishing White Matter Disease

Recent Posts

NHL All-Star Theo Fleury Shares Personal story to Support Greenwich Boy with Brain Disease

Former NHL All-Star Theo Fleury enthralled visitors as the headlining motivational speaker to help raise money for medical research of an extremely rare brain disease during a recent visit to the Ridgefield Playhouse on Rare Disease Day. Continue Reading →

Filed under: , , , , , , ,

PHOTOS: Teachers at Old Greenwich School Take Pies in the Face for a Great Cause

Old Greenwich School principal Jen Bencivengo’s lifelong friend Allyson, who also lives in Greenwich, has a son at Glenville School who has Vanishing White Matter disease. On Friday teachers at Old Greenwich School took pies in the face to raise money for research for a cure for the disease. Continue Reading →

Filed under: , , , , , , ,