Greenwich Free Press (https://greenwichfreepress.com/tag/vanishing-white-matter-disease/)
One in every 10 Americans has a rare disease, but because individually these diseases are so rare, getting desperately needed money for research and patient support can be extremely challenging. Continue Reading →
Former NHL All-Star Theo Fleury enthralled visitors as the headlining motivational speaker to help raise money for medical research of an extremely rare brain disease during a recent visit to the Ridgefield Playhouse on Rare Disease Day. Continue Reading →
Old Greenwich School principal Jen Bencivengo’s lifelong friend Allyson, who also lives in Greenwich, has a son at Glenville School who has Vanishing White Matter disease. On Friday teachers at Old Greenwich School took pies in the face to raise money for research for a cure for the disease. Continue Reading →